Publications
- Pedra, G., Christoffersen, P., Khair, K., Lee, X.Y., O’Hara, S., O’Hara, J., Pasi, J. (2020). The impact of factor infusion frequency on health-related quality of life in people with haemophilia. The Journal of Haemophilia Practice, 7(1).
- O’Hara, J., Finnegan, A., Dhillon, H., Ruiz-Casas, L., Pedra, G., Franks, B., Morgan, G., Hebditch, V., Jönsson, B., Mabhala, M., Tatjana, R., Van Thiel, I., Ratziu, V., Romero-Gomez, M., Bungianesi, E., Schattenberg, J.M., & Anstee, Q.M. (2020). Cost of non-alcoholic steatohepatitis in Europe and the USA: The GAIN study. JHEP Reports, 2(5).
- Galloway, J., Capron, J-P., De Leonardis, F., Fakhouri,W., Rose, A., Kouris, I., & Burke, T. (2020). The impact of disease severity and duration on cost, early retirement and ability to work in rheumatoid arthritis in Europe: an economic modelling study. Rheumatology Advances in Practice, 4(2).
- O’Hara, S., Castro, F.A., Black, J., Chaplin, S., Ruiz, L., Hampton, R.J., Sima, C.S., & O’Hara, J. (2020). Disease burden and remaining unmet needs in patients with haemophilia A treated with primary prophylaxis. Haemophilia/ Early View.
- Martin, A.P., Burke, T., Asghar, S., Noone, D., Pedra, G., & O’Hara, J. (2020). Understanding minimum and ideal factor levels for participation in physical activities by people with haemophilia: An expert elicitation exercise. Haemophilia, 26(4).
- Noone, D., Peda, G., Asghar, S., O’Hara, J. (2019). Prophylactic Treatment in People with Severe Haemophilia B in the US: An Analysis of Real-World Healthcare System Costs and Clinical Outcomes. Blood, 134(1).
- Martin, A.P., Mulhern, B., Shaikh, A., Asghar, S., O’Hara, J., Pedra, G., Sawyer, E.K., Li, N. (2019). Disease state adaptation experienced by patients with haemophilia: Literature Review and Expert Consensus. Blood, 134(1).
- Moss, E.L., Morgan, G., Martin, A.P., Sarhanis, P., & Ind, T. (2019). Surgical trends, outcomes and disparities in minimal invasive surgery for patients with endometrial cancer in England: a retrospective cohort study. BMJ Open, 10(9).
- Skinner, M.W., Nugent, D., Wilton, P., Mahony, B., Dolan, G., O’Hara, J., &Berntorp, E. (2019). Achieving the unimaginable: Health equity in haemophilia. Haemophilia, 26(1).
- Samuelson Bannow, B., Recht, M., Négrier, C., Hermans, C., Berntorp, E., Eichler, H., Mancuso, M.E., Klamroth, R., O’Hara, J., Santagostino, E., Matsushita, T., & Kessler, C. (2019). Factor VIII: Long-established role in haemophilia A and emerging evidence beyond haemostasis. Blood Reviews, 35.
- O’Hara, J., Walsh, S., Camp, C., Mazza, G., Carroll, L., Hoxer, C., & Wilkinson, L. (2018). The relationship between target joints and direct resource use in severe haemophilia. Health Economics Review, 8(1).
- O’Hara, J., Walsh, S., Camp, C., Mazza, G., Carroll, L., Hoxer, C., & Wilkinson, L. (2018). The impact of severe haemophilia and the presence of target joints on health related quality-of-life. Health and Quality of Life Outcomes. 16(84).
- Oladapo, A.O., Lu, M., Walsh, S., O’Hara, J., & Kauf, T.L. (2018). Inhibitor clinical burden of disease: a comparative analysis of the CHESS data. Orphanet Journal of Rare Diseases, 13(198).
- Booth, J., Oladapo, A., Walsh, S., O’Hara, J., Carroll, L., Garcia Diego, D.A., & O’Mahony, B. (2018). Real-world comparative analysis of bleeding complications and health-related quality of life in patients with haemophilia A and haemophilia B. Haemophilia, 24(5).
- O’Hara, J., Sima, C.S., Frimpter, J., Paliargues, F., Chu, P., & Pesch, I. (2018). Long-term outcomes from prophylactic or episodic treatment of haemophilia A: A systematic review. Haemophilia, 24(5).
- Watt, M., O’Hara, J., Noone, D., Jacob, I., & Booth, J. (2018). Association between bleeding events and non-drug direct costs in adults with severe haemophilia A. Value in Health, 21(1).
- O’Hara, Camp, C., Jacob, I., O’Mahony, B. (2017). A review of methodology and response to Iqwig Report “Treatment of Haemophilia Patients”. Value in Health, 20(9).
- Camp, C., O’Hara, J., Hughes, D., Adshead, J. (2017). Short-term Outcomes and Costs following partial nephrectomy in England: A population-based study. Kidney Cancer, 4(4).
- O’Hara J, Hughes D, Camp C, Burke, T., Carroll, L., & Garcia Diego, D-A. (2017). The cost of severe haemophilia in Europe: the CHESS study. The Orphanet Journal of Rare Diseases. 12(106).
- O’Mahony, B., Skinner, M.W., Noone, D., Page, D., O’Hara, J. (2016). Assessment of outcome in haemophilia- a patient perspective. Haemophilia, 22(3).
- Burke, T., Hughes, D., Forsey, J., Bunker, M., Bhattacharya, D., Smithson, W.H. (2016). A study of the impact of VNS on health care utilisation in England. Science direct, 34 .
- Camp, C., Smithson, W.H., Bunker, M., Burke, T., & Hughes, D. (2015). Impact of vagus nerve stimulation on secondary care burden in children and adults with epilepsy: Review of routinely collected hospital data in England. Epilepsy & Behaviour, 52.
- Hughes, D., Camp, C., O'Hara, J., & Adshead, J. (2015). Health resource use after robot‐assisted surgery vs open and conventional laparoscopic techniques in oncology: analysis of English secondary care data for radical prostatectomy and partial nephrectomy. BJU International. 117(6)
- Hughes D, Burke T, De Belder M. The incidence and economic burden of angina and chest pain following percutaneous coronary intervention: An analysis of English routinely held administrative secondary care data. Journal of the American College of Cardiology. 2015 66(15)
- Wiktop, M., Morgan, G,. O'Hara, J. et al. Patient preferences and priorities for haemophilia gene therapy in the US: A discrete choice experiment. Wiley online library