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September 2021

Preference Research – new Haemophilia study published

As a timely follow up to our June 2021 news article by George Morgan, ‘Preference research – the evidence based approach to quantifying the patient voice’, HCD Economics is able to report publication of a new preference research study, undertaken by George and co-authors, under the lead authorship of Michelle Witkop, Head of Research at the United States National Hemophilia Foundation. The study is published in Haemophilia, the official journal of the World Federation of Hemophilia.
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August 2021

Haemophilia in Latin America – HCD completes and expands burden of illness research

CHESS LATAM is an expanding research programme investigating the burden of illness (BOI) of haemophilia patients in Latin America. Building on the contribution of the CHESS (THE COST OF HAEMOPHILIA IN EUROPE & US: A SOCIOECONOMIC SURVEY) real world evidence investigation into BOI for haemophilia patients in Europe and United States, the CHESS LATAM research initiative employs the highly respected HCD Economics BOI methodology to uncover understanding of the BOI for haemophilia patients across the Latin American continent. This replication of an EU/US initiative is similar to the Latin American application of the Principles of Haemophilia Care for Europe (PHCE) in other regions of the world, undertaken in Latin America and published by Apsara Boadas in 2018.
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About us

HCD was created out of an alliance with University of Chester, charities and health service sectors in reponse to the ever-growing demand for economic analysis within healthcare and specifically the need for health economics and business intelligence within the public and third sectors.

Through these partnerships, HCD provides a unique insight and perspective, focusing our analyses on what matters to patients as well as decision-makers, all undertaken with academic rigour, independence and credibility.

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Our Process

We have created core partnerships with University of Chester and leading patient charities that underpin our approach.

Higher education

Academia has a leading role to play in providing an independent, credible evidence-base as well as evaluating current and new ways of delivering healthcare.

Charities

Our partnerships with patient charities ensure that any analyses we undertake reflect the day-to-day realities of living with a particular condition.

Data

We apply primary or secondary real world data sources depending on research needs and questions. From ethically reviewed burden of illness studies and bespoke service primary data, to secondary sourced disease registries and episode statistics.

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