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Combining our commitment to the rare disease community with our established leadership in patient and public engagement led research (PPIE), HCD Economics is announcing a 2021 commitment to identify and undertake research intended to build a repository of real-world evidence (RWE) that can be applied to NMD community evidence-based advocacy initiatives and other programmes. The commitment is to invest and develop partnerships for a RWE programme to support access for NMD patients to new and emerging novel therapies in the treatment and management of NMD.

The coreNASH: Multi- stakeholder Consensus on Core Outcomes for Decision Making About Nonalcoholic Steatohepatitis Treatment has announced publication of the work of the coreNASH panel. Leonardo Ruiz-Casas, Principal Health Economist, at HCD Economics is a member of the panel. The paper is published in the American Association for the Study of Liver Disease Journal, Hepatology Communications. The paper is available now.

A new study has just been published in the Human Resources for Health Journal. Author and HCD Economics colleague, Dr. Idaira Rodriguez Santana, undertook the research as a PhD student studying at the UK Centre for Health Economics at University of York. The study concludes that a reform intended to enhance the professional and career prospects of Spanish medical students on graduation with respect to international graduates is flawed. The results identified that the reform led to a widening of the gender gap among Spanish medical specialists. Specifically the reform had the unintended consequence of reducing the probability of Spanish female doctors accessing highly demanded specialities thus exacerbating the gender gap.

Even before the emergence of COVID-19, the significance of real world data to European health policy and programmes was growing – notably in the domain of patient-reported outcomes and their integration by healthcare decision makers into resource allocation decision making, typically undertaken by Health Technology Assessment agencies across Europe.

The live Virtual ISPOR Europe 2020 was held 16 – 19 November. The event brought together a vibrant community of experts and thought leaders virtually to help shape the future of HEOR. ISPOR states ‘we looked at fundamental conventions around value, risk, rewards, and the role of public and private sectors to drive innovation, investments and extending progress to broader public health concerns.’ HCD Economics received two Gold research awards from ISPOR. The Gold award is in recognition of having achieved the top 10% of reviewer scores.

Professors Manuel Romero Gómez and Jörn M. Schattenberg, leading experts in liver disease and members of the HCD Economics Expert Reference Group for the GAIN study (Global Assessment of the Impact of NASH (Non-Alcoholic SteatoHepatitis), a socio-economic study), addressed a global audience of over 30 delegates in a webinar intended to share the design and results of the GAIN study (published in 2020 in JHEP Reports the companion Journal to the highly respected Journal of Hepatology) and provide a forum for a live Q and A session, open to all webinar delegates. In his opening remarks Manuel confirmed that GAIN was part of ‘the main game’ to improve the outcome of NASH patients.

The Academic Health Economists Blog exists to provide an online presence for the discussion of issues and developments in health economics. The blog is a place where people can present their views, opinions, ideas, and takes on current affairs from the perspective of health economics. The site has a simple aim; to promote healthy debate in the field, with a sharing of ideas.